Informed Consent in Non-Profit Research: Principles, Challenges, and Practices

Informed Consent in Non-Profit Research: Principles, Challenges, and Practices

Author: Dr. Anna Neya Kazanskaia
Publisher: NEYA Global Publishing
Article | NEYA Global Journal of Non-Profit Studies
Year: 2025
ORCID: https://orcid.org/0009-0009-5669-1676

DOI: https://doi.org/10.64357/neya-gjnps-vz-imp-dt-cm-str-03


Open Publication PDF →

This material forms part of the NEYA Global knowledge architecture. Institutional, organizational, professional, training, consulting, curriculum, program design, or implementation use requires an active license from NEYA Global

Explore Architecture →
Module Overview →
Request Institutional Access →

About the Article

This article explores the ethical and practical dimensions of informed consent in non-profit research, highlighting its central role in protecting participant autonomy and ensuring research credibility. It examines the three core components of consent—information disclosure, comprehension, and voluntariness—and analyzes challenges in resource-limited, culturally diverse, or low-literacy environments. Drawing on historical ethical violations and contemporary community-based practices, the article presents strategies for adapting consent procedures to local contexts, including plain language, visual aids, translation, oral consent, and community engagement. By integrating global ethical standards with culturally sensitive practices, non-profits can strengthen trust, enhance transparency, and reinforce the integrity and social responsibility of their research initiatives.

Key Topics

  • Informed consent principles
  • Non-profit research ethics
  • Participant autonomy and voluntariness
  • Cultural sensitivity in research
  • Consent in low-resource contexts
  • Ethical oversight and best practices

Suggested Citation

Kazanskaia, A. N. (2025). Informed Consent in Non-Profit Research: Principles, Challenges, and Practices. NEYA Global Journal of Non-Profit Studies. NEYA Global Publishing. https://doi.org/10.64357/neya-gjnps-vz-imp-dt-cm-str-tp-03

References

Beauchamp, T. L., & Childress, J. F. (2019). Principles of biomedical ethics (8th ed.). Oxford University Press.
Emanuel, E. J., Wendler, D., Killen, J., & Grady, C. (2004). What makes clinical research in developing countries ethical? The benchmarks of ethical research. Journal of Infectious Diseases, 189(5), 930-937. https://doi.org/10.1086/381709
Flory, J., & Emanuel, E. (2004). Interventions to improve research participants' understanding in informed consent for research: A systematic review. JAMA, 292(13), 1593-1601. https://doi.org/10.1001/jama.292.13.1593
Kazanskaia, A. N. (2025). Visualizing Impact: Data Communication Strategies. NEYA Global Publishing.
Kazanskaia, A. N. (2025). Qualitative Research Methods. NEYA Global Publishing. https://doi.org/10.64357/qualitative-research-methods-2025
Kazanskaia, A. N. (2025). Grant Reporting and Data Analysis. NEYA Global Publishing. https://doi.org/10.64357/grant-reporting-data-analysis-2025
Kazanskaia, A. N. (2025). Tools for Strategic Evaluation. NEYA Global Publishing. https://doi.org/10.64357/tools-evaluation-2025
Kazanskaia, A. N. (2025). Participant Rights and Protections in Non-Profit Research: Safeguarding Welfare and Building Trust. NEYA Global Journal of Non-Profit Studies. https://doi.org/10.64357/neya-gjnps-vz-imp-dt-cm-str-07
Kazanskaia, A. N. (2025). Reporting and Communicating Ethical Research: Transparency, Accountability, and Accessibility. NEYA Global Journal of Non-Profit Studies.
Molyneux, S., & Bull, S. (2013). Consent and community engagement in diverse research contexts: Reviewing and developing research and practice. Journal of Empirical Research on Human Research Ethics, 8(4), 1-18. https://doi.org/10.1525/jer.2013.8.4.1
National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1979). The Belmont Report. U.S. Government Printing Office.
World Medical Association. (2013). Declaration of Helsinki: Ethical principles for medical research involving human subjects. JAMA, 310(20), 2191-2194. https://doi.org/10.1001/jama.2013.281053
https://neyaglobal.com/journal-nonprofit/informed-consent-in-non-profit-research-principles-challenges-and-practices
344
September 28, 2025